It's a Girl Fight
It's a Girl Fight

Official Transplant Date😷

So I took a little break from blogging…to say I’ve been overwhelmed is kind of an understatement. See about a week before being diagnosed I bought a home and it was a complete gut job…after months and months and tons of stress and sweat it is about 90% done and I’m so happy it’s at this point. My biggest goal before heading to Tampa for BMT was to get my house all set up so I can come back to it DONE after I get through this whole thing. Another challenge the pass couple of weeks has been setting up my life the best way possible so that it can run on auto-pilot back home while I move to Tampa for 3 months. Meaning tons of errands and handling things I really rather not have to deal with but needed to face. See when you are preparing to have something like BMT you have to take into account that you may not make it through or you may reject your BMT and have serious complications that may cause you to be hospitalized for longer so I had to make sure a lot of things were “squared away” so my parents don’t have to deal with or take on any of my responsibilities should something like that happen. You wouldn’t imagine all the little things that go into that…gah but I’m glad I took care of it.

Moving on I officially have a BMT date… March 5th, 2017 will be day 0 (I’m starting all over on this day), a lot of you have been asking me about this date so you can pray for me and or have me in your thoughts so there it is. My donor “Youngest Male” has been confirmed and so I will be moving to Tampa in a couple weeks to undergo all the testing (April 21-23) I am dreading. Not so much the 3 days of organ testing but the dreadful PETSCAN that will show how my lymphoma is doing and well that’s been my biggest concern. Everyone tells me it shouldn’t have gotten worse since my last pet scan in October since I’ve been undergoing treatment and everything else is in remission but you can’t help but think every ache and pain is related to this thing in your body spreading and completely invading your body. Ugh sorry it’s obviously a trigger for me if you can’t tell lol But I have to have hope and stay positive that the pains are all related to my bone marrow regenerating every time we kill it with chemo and the tons of meds I’m on. This is what I’m told it is so yes let’s go with that!

Let’s see what else is going on…I’m currently at Moffitt I’m here for my final round 4B! Should be able to clear my meds and head home by Friday…I will have a couple weeks to gather my life and woman up and move here to take this BMT on. I’m nervous and honestly scared for what’s to come but I’m also excited to get a new lease on life and be lucky enough to have a match that is willing to donate his bone marrow to essentially save my life. I’m already thinking of getting a manual treadmill for my 3 months here so I can continue to do some cardio while I’m quarantined on the BMT floor for that month. My biggest “issue” from chemo and steroids has been the weight gain and it’s made me completely miserable. It’s so frustrating to do cardio and try and eat right and still gain weight…I know I have to take the steroids for inflammation yadda yadda but come on give me a break I was just getting myself into the best shape of my life. I think one of the things I look forward to the most aside from being cancer free and being back home and back to “normal” will be getting back into shape and feeling like myself. Getting my routine back, seeing my friends again and being able to go out and not feel horrible would be great. Hopefully putting it out into the world right now will help it come to fruition…while I’m at it I’d like to state that I want go get through this…I want to be the best version of myself after this whole “thing” is over. I want to travel and do more things that make me happy and fulfill tons of other things that make me happy and I am passionate about…so yeah! Looks like I am being summoned to chat lol so I will cut this off now! If you’ve read this thank you for all the support! Make sure to leave me a comment! <3

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Comments 5

  • Stephanie

    Written on January 26, 2017

    Reply

    Vanessa you are such an inspiration! I’m thinking of you and can’t wait to work out with you in the gym again!

  • Christopher Rios

    Written on January 26, 2017

    Reply

    I can relate to this post. I had no idea you had lymphoma too. So does that mean you have tumors too, not just blood cancer? This sounds more difficult to deal with. Also, didn’t know you bought a house soon before you were diagnosed. It’s crazy how one has a significant timelined event before getting diagnosed. Diagnosis never comes at a good time lol why is that? Crazy shit!

    • Vane

      Written on January 26, 2017

      Reply

      Hi Chris!
      I know diagnoses doesn’t give a shit about us lol or our plans. I caught everything early it was a small “lesion” in my shoulder and started to show in my other shoulder and a part of the rib by the time I had my petscan here at Moffitt right before my A round. From what I know they werent “tumors” yet just a small lesion at the point of diagnoses. My blood aka leukemia was 1% I cleared that up in a week and my bone marrow biopsy came back at at a false negative 1% as well so that’s why I’ve been place on the lymphoma spectrum from the beginning. Maybe that’s why I’ve never had a fever I know I’ve seen that more w my peeps w the hard core leukemia. Mine is more bone pain and aches aka like I got hit by a bus. But either way it’s all treated like ALL and we fight right? I’m gonna get through and be there for you and hopefully you got me too! xo Vane

  • Geneve Diana

    Written on January 26, 2017

    Reply

    We will keep u in our prayers and thoughts. You won’t be alone, your 5 both family will come visit you in BMT. Although this is not an easy process, you are a very strong woman and you will get through it. Just remember we will always be here for you. Best wishes!

  • Danielle

    Written on January 26, 2017

    Reply

    <3 Just keep on keepin on…you have (as I have already told you) shown this cancer who it messed with. You are going to come out of this on the other side with a renewed sense of purpose. I will see you soon! If you need ANYTHING let me know. Love u 🙂

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